Everybody's good vibes via text and Facebook and other magical internets were felt, heard, and appreciated today. They certainly helped my anxiety from completely overtaking my brains and making me run through a wall. Poor Kris: a one hour MRI and two 2-hour ultrasounds. Whoa. Here's what's up.
Basically, the way we are approaching this isn't much different from before. We just just have a better idea of exactly what is going on. The CCAM (see earlier post) is a hybrid lesion, meaning it is made up of a mass that has its own blood supply and other, smaller cystic lesions. This doesn't really impact the management of it. Yet.
Right now, the mass is large, but not large enough to cause immediate concern (i.e., heart failure). He will be measured every week; they say the mass should plateau and stabilize around 28-30 weeks. Then it should stay the same size as the baby grows and will be dealt with after he's born. They assure us the "vast majority" of cases behave this way and are successfully treated after birth.
(Side note: when I was a medical copy-editor, the phrase "vast majority" used to drive me nuts because it's either a majority or it's not, amiright. The "Vast" in "Vast Majority" used to get a violent slash from the red pen. I hereby retire my grudge against "vast majority" because I'm liking the odds on "vast" right about now.)
Of course, the lesion could not behave like the vast majority and cause some problems down the road. Additoinally, the fact that we have identicals with one placenta could cause problems. But right now, tonight, we can relax a little bit.
Also, CHOP is sick. I have complete confidence in these doctors, nurses, technicians, and technology. Although we have carved out the tiniest sliver of odds by pulling down monochorionic identical twin boys with one presenting hybrid congenital cystic adenomatoid malformation/bronchopulmonary sequestration...at least we live in the right town for it.
Tonight, I dream in ultrasound.
Thanks for your love and good thoughts. Check these dudes out.
No comments:
Post a Comment